Time to get Educated!
Providing education to healthcare and education professionals for better EDS care.
Lesson 1: EDS = Ehlers - Danlos Syndrome,
a genetic connective tissue disorder
My
Story
From Patient to Educator
After years of living with undiagnosed hypermobile Ehlers-Danlos Syndrome (hEDS) and Mast Cell Activation Disease (MCAD), I experienced firsthand how gaps in provider knowledge can lead to harm.
As a health educator, I now train professionals, parents and teachers to recognize, understand, and better support people with these complex conditions—offering the clarity I once needed.
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As a mom of a child with hEDS, I am motivated to do this work to create more awareness to help families get earlier diagnosis and treatment, and to also build more understanding in schools about how to love and support their young people.
Services
Providing a variety of services to help educate the medical and educational community about EDS for earlier diagnosis, and to support the EDS Community.
EDS Educational Trainings
For doctors, nurses, coaches, teachers, schools, families
EDS Advocacy
Writing, advocating, lobbying and more.
Support Groups
Find or propose a support group